Skip to main content

Raise Awareness on Meniere's Disease!


I addressed this matter on my other blog a while back, but what better place to do that again than on this blog!

I think everyone with Meniere's disease can agree that there isn't enough information out there and way little research is being done. So many people have Meniere's disease, and yet nobody talks about it. Why is that? Why isn't Meniere's disease considered important enough to make it more known? Our curse is that this disease is invisible. Maybe if we were all walking around with our heads bandaged up, people would take it more seriously.

There is a petition online started by Judy McNamara Tripp to get Bono and U2 help us raise awareness. The petition states the following:

We are requesting that you would consider one of two possible options: First, creation of a simple (filmed) statement before you sing your song, “Vertigo” during one of your concerts, mentioning the need for a cure, something along the lines of: “We need to find a cure for the millions who suffer lives filled with vertigo and deafness caused by Meniere’s disease” or a similar statement. Or, if more acceptable, for you to create a public service video for 'YouTube', that addresses Meniere’s disease, helping us to spread awareness for this complex disease by raising interest and empathy and hopefully increasing the 'desperately needed' research dollars that will provide better treatments and ultimately a cure.

You can find the petition HERE. Signing it only takes a minute, and we are so close to 10,000! Please make sure to share this with your family and friends. Thank you!


Comments

Popular posts from this blog

My First Tattoo

So, I got inked. And I love it!
I don't take tattoos lightly. When I was a teenager, I was sure I would get my first tattoo the second I turned eighteen. Good thing that didn't happen... Tattoos are, as you know, permanent. Before I stumbled upon sign language tattoos I had never found anything that I would permanently want inked on my skin. And when I found this design, I wanted to think it through. Would I regret it? Is it a bad idea? 
I'm not opposed to beautiful tattoos that people get just because. To each their own. However, I decided early on that if I was ever going to get a tattoo, it would have to mean something, and it would have to be a personal decision, and there for myself, not for anyone else. It would have to be in a place where I can show it, but a place I can also cover up if needed. No way was I going to get a tattoo that would insult somebody in any way. 
So, why this tattoo? I'm a very different person from who I was a year ago. With my progressi…

What I Want You to Know About Me and My Life with Meniere's Disease

If you know someone with Meniere's disease, you should read this. If you know me, and are a part of my life, then you should definitely read this.

1. It's completely fine to ask me about anything related to my condition! I would rather have you ask than make assumptions. MD is not a sensitive subject to me, and I'm happy to fill in the gaps!

2. My condition is permanent. My hearing loss is permanent. Please don't ask me a year from now if my ear is all better - it won't be. There's no cure for MD, and this is something I'm stuck with until there is one.

3. If/when I say I can't hear you, I mean it. Please accommodate to that, and speak up, or write or type what you need to say to me. Or, if you know Finnish or American sign language, you can sign to me ;)

4. When I have vertigo, please know that it's quite debilitating. If I ask you to drive, it literally means my world is spinning out of control and you do not want me operating heavy machinery. My…

Meniere's Disease Symptoms

Meniere's disease is different with everyone, that much we all know. However, there are a variety of symptoms that everyone with MD experiences at least sometimes. Below I have listed common symptoms that occur before, during and after attacks / between attacks, and I have underlined everything that I am experiencing during those stages on a regular basis. All of the information I have gathered in this post, can be found from Vestibular Disorders Association's (VEDA) website, which is an excellent source of information. This post is not sponsored.

BEFORE AN ATTACK:
balance disturbancedizziness, lightheadednessheadache, increased ear pressurehearing loss or tinnitus increasesound sensitivityvague feeling of uneasiness DURING AN ATTACK: spontaneous, violent vertigofluctuating hearing lossear fullness (aural fullness) and/or tinnitusanxiety, feardiarrheablurry vision or eye jerkingnausea and vomitingcold sweat, palpitations or rapid pulsetrembling AFTER AN ATTACK / BETWEEN ATTACKS: …